Ella's Corner: Sigh...(by Michael)

Ella's Corner: Sigh...(by Michael): There could be a lot said for the past year, 2011. There could also be a lot not said. Looking back over the year in review I cannot hel...

Ella's Corner: The Cough (by Lindsay & Michael)

Ella's Corner: The Cough (by Lindsay & Michael): 1 to 6. That's how long Ella was up Thursday night; from 1am to 6am. She had a cough. A simple cough...for you and me maybe, but not fo...

Ella's Corner: Excited Sadness...(by Michael & Lindsay)

Ella's Corner: Excited Sadness...(by Michael & Lindsay): Three-hundred eleven pounds. 15x the weight of Ella. Designed in Sweden. Astronomical price tag. Delivered to our house and ...

Ella's Corner: The Regression Continues

Ella's Corner: The Regression Continues: Earlier in the fall we learned that Ella's continued regression was not usually "typical" for a child with Type 2 SMA, which led to the new ...

Ella's Corner: How Does This Happen Anyway? (by Michael)

Ella's Corner: How Does This Happen Anyway? (by Michael): Most people I have spoken with since Ella was diagnosed with SMA have told me that they had never heard of this disease. Neither had w...

Ella's Corner: Calendars (by Lindsay)

Ella's Corner: Calendars (by Lindsay): Yesterday I got our new 2012 calendar. In addition to our online calendar, we have a wall calendar that I write pretty much everything we ...

Ella's Corner: She's Free! (by Lindsay)

Ella's Corner: She's Free! (by Lindsay): I always wondered how they got a cast off... Today I got to see how it happens. Ella got her cast off and had new x-rays of her arm, and sh...

Ella's Corner: Permobil K450 MX (by Lindsay)

Ella's Corner: Permobil K450 MX (by Lindsay): Oh my. We got a call from the pediatrician's office today. The insurance company approved the power wheelchair for Ella. 100% covered (...

Ella's Corner: Holiday Cheer (by Lindsay)

Ella's Corner: Holiday Cheer (by Lindsay): Everywhere I turn, I'm reminded that the Christmas season is upon us. But this year, it's different. I'm not having much Christmas cheer...

Ella's Corner: A Matter of Time...(by Michael & Lindsay)

Ella's Corner: A Matter of Time...(by Michael & Lindsay): We knew this would happen. It was all a matter of time. The first time is the hardest. We survived. The Stomach Flu. 4:00...